When I was pregnant with my youngest son, I went grocery shopping in the tiny rural town where we had recently moved. It was summertime, and my 12 yr old sister and 10 yr old brother were visiting for a while. My older boys were 3 and 4, and my little brother was leading a game of…Â
EDS is a genetic collagen defect that can affect any part of the body. There's a long list of comorbidities depending on the type of EDS. One not mentioned but very important is Chiari Malformation, which I have and required brain surgery to help alleviate symptoms and stop progression.…Â
I have always had an extremely high pain tolerance but six years ago was completely debilitated by back and head pain, swallowing issues, dizziness, and a host of other symptoms. After passing me to a another doctor for back injections that didn't help I went back to my PCP who proceeded…Â
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