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    Updated on Mar 4, 2019. Posted on Mar 2, 2017

    15 Things Anyone With Endometriosis Needs You To Know

    Just because you can't see our illness doesn't mean it isn't there.

    by ,

    1. It's not just a "bad period."

    Charlotte Gomez / BuzzFeed

    Endometriosis is a condition where the tissue that normally lines the inside of the uterus actually grows outside of the uterus (typically on your ovaries, fallopian tubes, or pelvic organs). This can cause severe pain, inflammation, and even the formation of scar tissue. Pain from endometriosis can occur at any time of the month, and is not limited to menstrual cramps.

    2. Painkillers usually don't do the trick.

    Charlotte Gomez / BuzzFeed

    3. And the pain doesn't always manifest in the same way.

    Charlotte Gomez / BuzzFeed

    Hello, why does my leg hurt today?

    4. Our endometriosis is probably not going away anytime soon...

    Charlotte Gomez / BuzzFeed

    There is currently no cure for endometriosis.

    5. ... So we don't always know what to say when someone asks if we're "feeling better yet."

    Charlotte Gomez / BuzzFeed

    Like, no? I'm not. Sorry.

    6. Pregnancy isn't a cure.

    Charlotte Gomez / BuzzFeed

    7. And sometimes neither is surgery.

    Charlotte Gomez / BuzzFeed

    8. There's a good chance that we've tried every single "cure" available on the internet.

    Charlotte Gomez / BuzzFeed

    So while we appreciate your concern, we don't want to know about the weird pill your Facebook friend from high school messaged you about.

    9. We never *choose* to miss out on social activities due to pain.

    Charlotte Gomez / BuzzFeed

    Being in pain literally every single day is certainly not a choice.

    10. It's not just physical pain, it's emotional.

    Charlotte Gomez / BuzzFeed

    Dealing with physical pain day after day can take a serious toll.

    11. It's not uncommon.

    Charlotte Gomez / BuzzFeed

    It's estimated that at least five million women live with endometriosis in the US alone.

    12. But it's still common to be misdiagnosed for years.

    Charlotte Gomez / BuzzFeed

    Research suggests that there is an average of 7.5 years between a woman seeing a doctor and actually getting the endometriosis diagnosis.

    13. It affects our lives in some way every. single. day.

    Charlotte Gomez / BuzzFeed

    14. Telling us our illness "could be worse" is incredibly insensitive.

    Charlotte Gomez / BuzzFeed

    Absolutely, there are other problems and illnesses in the world. But that doesn't change the fact that we are living in daily physical pain.

    15. And just because you can't see our illness doesn't mean it isn't there.

    Charlotte Gomez / BuzzFeed

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