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16 Things Healthy People Say To EDSers

Ridiculous things people who don't have or understand Ehlers-Danlos Syndrome say to those of us who do have EDS. Or - What Not To Say To Someone With Ehlers-Danlos Syndrome. Reactions to stupidity may be NSFW.

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2. "If you just got out more, or got some exercise, you'd feel better."

Orange Is The New Black / Via

Besides the fact that exercising can be dangerous for us (because it can cause dislocations, tears, and ruptures - so it's always best to be done with a physical therapist or workout partner), it can be extremely painful for some - and no, doing more won't make us "feel better" unless you think worsening symptoms is feeling better?

5. "Well, if you'd just pray more..."

Late Night With Jimmy Fallon / Via

Ehlers-Danlos Syndrome is a lifelong, degenerative illness - from birth to death. There's no cure. I'm not just going to wake up one day and instantly be fine because I prayed for it. Are you kidding me?!

8. "I wish I were that flexible!"

Every time a joint slips or dislocates, the soft tissue connected to that joint — tendons, ligaments, muscle, fascia, blood vessels — all stretches. Because of the structural defect in collagen, all that connected tissue is stretched beyond what normal should be; high resolution MRIs reveal microtrauma, microscopic tears that start up the inflammation and coagulation cascades. But because each joint can subluxate over and over in just a single day, these microtraumas happen over and over in the same tissue without healing successfully. - Dr. Clair Francomano

10. "You know you'd feel better if you just lost/gained some weight."

Supernatural / Via

Weight is not an indication of health. Some EDSers are thin, and have trouble gaining. Some EDSers are larger, and have trouble losing. We can have a lot of gastrointestinal issues that you have no clue about, in addition to all the widespread, chronic joint pain.

11. "Isn't there some surgery that can fix you?"

The Office NBC

Nope. Surgeries are like band aids for EDSers. Sometimes there's a surgery that might be able to help one of our multitudes of problems - like a knee or hip or shoulder or stomach, a little, for awhile. But we heal slower than most people, and faulty connective tissue in our entire bodies isn't something that can be replaced.

13. "But you were fine yesterday/this morning."

Overexertion, activity, weather, stress, too much standing, too much walking, too much sitting... any of these things can cause us enough pain to need to stay in bed for days with ice packs, heating pads, pain relievers, etc. My pain is not about you.

15. "You're always so tired. I wish I could just lay around all day!"

Grey's Anatomy

And I wish I could have a normal, active life! If you don't understand Chronic Fatigue Syndrome (a symptom of EDS), you need to read The Spoon Theory by Christine Miserandino

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