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    15 Things People Living With Cystic Fibrosis Want You To Know

    It isn't "just a bad cough".

    1. It isn't "just a bad cough".

    2. It's a genetic disorder. And around 1 in 25 of the UK population carry the gene.

    Courtesy Charlotte Davies

    "If two people with a copy of the faulty gene have a child, there is a 1 in 4 chance that their child will be born with cystic fibrosis. More than 2.5 million people in the UK carry the faulty gene, around 1 in 25 of the population, and there is currently no cure." – Dr Keith Brownlee

    3. There are other consequences too.

    4. It's not infectious.

    5. It's an invisible illness.

    6. And it's incredibly lonely.

    7. And diagnoses are sometimes had to come across.

    Courtesy Poppy Roberts

    "The majority of my issues when I was young were digestive, which is slightly against the grain when it comes to CF, so it took over three years to get a formal diagnosis, which is a fairly long time when you have a very unhappy malnourished little boy.

    


    "One doctor examined me one day, agreed with the suspicions of my parents and quickly arranged a sweat test, which proved them all right and CF was the result." – Michael Winehouse

    "I have had CF my whole life. I remember taking my Creon [an enzyme replacement drug] mixed with little pots of yoghurt in primary school; they recycled all the capsules to make an enormous owl and pussycat picture in the hallway. I was pleased I was the only one who had to take tablets in the class!" – Poppy Roberts

    8. Cystic fibrosis affects every part of the day.

    9. And exercise is really important.

    Courtesy Sophie Holmes

    "The importance of exercise is not realised. For me it keeps me well, lung function at or above 100%, and living live to the fullest – the correct combination of different types of fitness, nutrition, and rest with our medication. Everyone needs to be fully educated as to why it works and why it will keep you breathing and well, as I truly believe it is part of the key to combating CF especially while there is no cure." – Sophie Holmes

    10. As is eating a ginormous number of calories.

    11. You get organised pretty quickly.

    12. And learn to know your own body.

    13. You can be diagnosed at any age.

    14. And everyone's typical day is different.

    15. And the best support you can give them is to be considerate.

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