This Hilarious, Heartbreaking Ice Bucket Challenge Is A Reminder Of What The Craze Is All About

If you want to know why the Ice Bucket Challenge actually matters, watch Anthony Carbajal’s video. Some NSFW language.

1. The first couple of minutes of this video are hilarious. Anthony Carbajal clearly isn’t a man to do things by halves.

Here’s Anthony’s fundraising page.

2. He nominates Ellen DeGeneres and Miley Cyrus. Then things get steamy.

 

3. And we all know what’s coming next.

4. But it’s what follows that makes this video so special.

Anthony explains that he comes from a family with a history of ALS: his grandmother and mother were both diagnosed with it, and at 26, so was he.

“ALS is so, so fucking scary, you have no idea,” he says.

5. “People are getting frustrated…I promise your news feed will go back to cat videos and ‘Let It Go’ covers.”

He explains that he’s beginning to lose control of his hands and is having trouble turning on his car and buttoning his shirt. He says that at some point “I won’t be able to use my arms or hands at all.”

6. “Eventually I won’t be able to walk, talk and breathe on my own,” he says.

 

He explains that “this is the first successful advocacy we’ve ever had…every single challenge lifts my spirits, lifts every single ALS patient’s spirits…we’re so, so grateful.”

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