"On the outside I'm great, but inside, my body is trying to destroy itself."
"If people could just stop recommending miracle substances in general, that’d be great. Or telling me to work out more. Or suggesting I just need needles in my face or suction cups on my back, or to ‘just relax.' I've heard it all. I’ll, instead, defer to a trained medical professional and my physical therapist."
"It’s hard to have doctors who brush off looking into the issue because it’s just 'pain,' without considering how bad it might be. Sure, my MRI or X-ray might not show a problem that day, but it doesn’t mean there’s no problem or no pain. It’s terrible to be told by a doctor that you have a 'successful knee' when it still hurts to walk and go up and down stairs."
"I’ve had extremely painful periods since high school. The pain got so bad. Five doctors and many years later, I was diagnosed with one of the most severe cases of endometriosis my new doctor has seen. I’ve had had two surgeries in four years and been on medication that’s put me through menopause twice. I still have constant pain every day."
"People forget very quickly that despite your age and the invisibility of symptoms, that doesn't mean you don't have it. A lot of life with chronic pain is also living with the disappointment on someone's face when you have to back out of plans, or leave early to go home because sitting up hurts too much right now."
—Melissa Croft, Facebook
"I wish people knew that just because I don’t always have the energy or motivation to socialize doesn’t mean I don’t still want an invitation — just in case I'm having a good day. I can’t ever predict it. And you shouldn't stop trying to engage with me. I need to feel loved even if I can’t always participate."
"Working a full-time job is taxing on the body, and the pain causes 'brain fog' and migraines, which makes it hard to concentrate or retain information. Not to mention the depression and anxiety you get from your nerve endings being out of whack, constantly tolerating the pain."
"I wish my husband could understand that I’m not lazy, or upset, or just tired if tasks don't get done or we don’t have sex. I wish he knew that 'drinking more water' or trying fad diets won't magically cure autoimmune diseases or trauma from a car crash."
"It would mean the world if you take time to read up, question, and follow-up with to doctors on MRIs or X-rays or treatments. Being sick is hard and being in the hospital so often is hard. Being alone with it all is hard. Call, text, or send emails. Just let them know they're not alone."
—Erica Drewke, Facebook