The Boy Whose Skin Fell Off - Documentary

Jonny Kennedy is a man with a lot to do. He’s got just four months to move home, befriend Nell McAndrew, fly a plane, visit Downing Street - and plan his own funeral. 36-year-old Jonny is an extraordinary man with a terrible condition - Dystrophic Epidermolysis Bullosa (EB) - which means his skin literally falls off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer.

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