I'm a Slayer, ask me how!
    • kirstizoe

      ahahahahhahahha. Yes. All the time. One time I was at the GYN for problems with pelvic pain, and my GYN (who had her fingers IN my vagina folks) was telling me I wasn’t in pain as I’m flinching and twitching with tears steaming down my face. That is one example of many.  I’ve got Fibromyalgia, Joint Hypermobility, POTS, and an as of yet undiagnosed chronic pelvic pain condition. I’ve been shunted from doctor to doctor since I was a about 6 years old. I’ve been told its all in my head, I should exercise more, I should rest more, I should eat this, or eat that. Ugh. I’ve had doctors laugh me out of their offices. What I’ve learned? Fire them first. Life is too short for shitty doctors.

    • kirstizoe

      Kirsten Zoe · Professionally disabled at Chronic Illness Central
      How hard I work to feel not as shitty as I normally do. I have Ehlers Danlos Syndrome, POTS, and Fibromyalgia. A good pain day is a 3/10, a normal day is 4 or 5/10. I can keep smiling or laughing until I’m at a 8 or 9/10. I currently can’t hold down a job, but I go to physical therapy three times a week, and occupational therapy twice a week. Six days a week I’m either at therapy or the gym working on my strength training. I have monthly behavior therapy to deal with the anxiety and depression that comes with my conditions (this much pain will fuck with your brain) and regular appointments with specialists ranging from geneticists to autonomic neurologists. So yeah I’m a grown woman living at home with my parents with no job (right now) but my full time job right now is attempting remission and recovery. I still have goals- I’m working on going back to school (online) to finish my Master in Social Work.

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