This post has not been vetted or endorsed by BuzzFeed's editorial staff. BuzzFeed Community is a place where anyone can create a post or quiz. Try making your own!Buzz·Posted on Feb 22, 201517 Things You'll Only Understand If You Have A Rare DiseaseSometimes it isn't so great being one in a million.by FindacureCommunity Brand PublisherFacebookPinterestTwitterMailLink 1. You have weird symptoms that no one can explain Tap to play GIF Tap to play GIF fyspringfield.com / Via giphy.com Yes, it seems completely obvious that black urine and crippling arthritis are caused by the same thing. 2. You’ve lost count of how many times you’ve been told you’re a hypochondriac Tap to play GIF Tap to play GIF genevaincontrol.tumblr.com / Via giphy.com You start to doubt your own sanity. 3. When you finally get a diagnosis, you feel like this… Tap to play GIF Tap to play GIF piinkwinemakesmeslutty.tumblr.com / Via giphy.com 10% of people with a rare disease have to wait more than 10 years to find out what’s wrong with them. 4. Then you find out that there is no treatment Tap to play GIF Tap to play GIF tumblr.com / Via giphy.com Of 7000 rare diseases, only 200 have cures. 5. Or there is a treatment but it's crazily expensive Tap to play GIF Tap to play GIF cheezburger.com / Via giphy.com Rare disease treatments can cost more than £100,000 per year. 6. You can’t find any information anywhere Tap to play GIF Tap to play GIF eddersko.tumblr.com / Via giphy.com I didn’t know it was even possible to get zero results in Google. 7. Or there is information but it all contradicts itself Tap to play GIF Tap to play GIF tumblr.com / Via giphy.com So I should drink less water AND avoid dehydration...? 8. Or it’s written in scientific gobbledegook Tap to play GIF Tap to play GIF tumblr.com / Via i.giphy.com Mucopolysaccharidosis II is a rare X-linked recessive disorder caused by deficiency of the lysosomal enzyme iduronate sulfatase, leading to progressive accumulation of glycosaminoglucans.Obviously. 9. You become a PhD in your condition Tap to play GIF Tap to play GIF justadreamtobewithyou.tumblr.com / Via giphy.com No one else seems to know anything, so you end up doing the research yourself. 10. No one can say the name of your condition Tap to play GIF Tap to play GIF chocolatosa.tumblr.com / Via giphy.com Saying “lymphangioleiomyomatosis” has become your party trick. 11. You have to explain your condition to every doctor you see Tap to play GIF Tap to play GIF zwaiitan.tumblr.com / Via giphy.com In fairness, with 7000 rare diseases, it’s not surprising they haven’t heard of most of them. 12. Then you become their prize patient Tap to play GIF Tap to play GIF dope-nba-gifs.tumblr.com / Via giphy.com Doctors see the same types of illnesses day in and day out, so when they see a patient with an unusual condition many take a special interest. 13. You have at least three different doctors... Tap to play GIF Tap to play GIF larvitarr.tumblr.com / Via giphy.com You have a cardiologist, dermatologist, pulmonologist, oncologist, physiotherapist and geneticist on speed dial. 14. … which means at least three different appointments Tap to play GIF Tap to play GIF tumblr.com / Via giphy.com At different times on different days, at different hospitals. Some patients have to travel hundreds of miles to see a doctor who knows anything about their disease. 15. When you meet someone else with the same condition it's like... Tap to play GIF Tap to play GIF marthamoon.tumblr.com / Via giphy.com I never thought I'd find you! 16. You wonder how to make your disease go viral Tap to play GIF Tap to play GIF huffingtonpost.tumblr.com / Via giphy.com Only people living under a rock didn't hear about the ALS ice bucket challenge. 17. Remember though, you are not alone rarediseaseday.org / Via rarediseaseday.org Most rare diseases are chronic and debilitating. 80% are genetic and around half affect children. A third of children who have a rare disease will not live to celebrate their 5th birthday. In Europe, a disease is considered rare if it affects fewer than 1 in 2000 people. However, there are so many rare diseases that there are an estimated 350 million people worldwide living with a rare disease. It’s thought that 1 in 17 people in the UK and 1 in 10 people in the US has a rare disease. So even if you don’t have a rare disease, you probably know someone who does.If you would like to learn more about rare diseases, or want to know what events are going on near you, please visit the Rare Disease Day 2015 website.H/T to Global Genes, Rare Disease UK and Findacure for the stats.H/T to @HypoparaUK and @alanROYGBIV for their suggestions.The author of this post, Lizzie Perdeaux, is a medical writer at Oxford PharmaGenesis™ and prepared this post for Findacure pro bono.