Our friend’s 2-year-old daughter, Sienna, has a horrible, rare genetic disease called F.O.P. It turns tissue and muscle into bone, and eventually turns people into human statues, imprisoned in their own bone.
So this poor little girl can’t run or skip or jump, or even hold her mom’s hand when they walk. It’s too dangerous, because if she falls, more bone will grow.
If, and when, we raise $1,000,000, doctors at Penn University can do a clinical trial, which they believe will lead to effective treatments in a matter of a few years. This will essentially save Sienna’s life. She will no longer be in danger of a bone growing into her heart, lungs, or brain.
Any help we can get to spread the word would be greatly appreciated. Please watch and share the video, then visit http://www.siennasflowergarden.com to plant your flower.
This post was created by a user and has not been vetted or endorsed by BuzzFeed's editorial staff. BuzzFeed Community is a place where anyone can post awesome lists and creations. Learn more or post your buzz!
- Here's how bankers are using a powerful, little-known justice system to turn a huge profit: part three of a BuzzFeed News investigation.
- Donald Trump says he's making a last-minute trip to Mexico today before his speech on immigration policy.
- Netflix has announced that "Stranger Things" is coming back for a second season in 2017.