Rare Disease Day is celebrated every year, but it often is overlooked. There are worldwide events to mark this day that is used to raise awareness of rare diseases.
According to the Rare Disease Day website, a rare disease in Europe is one that affects one in 2000. The United States defines a rare disease as one that affects fewer than 200,000 Americans at a time.
Issues Patients Face
Rare diseases are just that- rare. This causes issues such as lack of knowledge about the disease and no treatments for the disease. This, in turn, places a huge burden on patients and their loved ones.
Most Common Rare Diseases
Even the most “common” rare diseases are not talked about widely. There are 6,000 rare diseases that are currently known, but below are the top 10 most "common".
How to Get Involved
Rare Disease Day is a day to be informed and get involved. No act is too small and every donation amount can make a difference, whether you give $1 or $1,000 to research.