My sister has Prader-Willi, a very rare and complex genetic condition. Spending time with her has taught me the art of patience and understanding. There are good days and bad days. The good days are amazing- the other day I watched my sister, who’s had almost 10 back surgeries, get a hit in one of her first softball games all on her own! The bad days suck, but that’s when the patience and understanding come in. With enough of those two things you can get through anything. There is a lot of explaining and repeating yourself when a routine is disrupted, but you have to have patience and understand that the stress/anger/sadness that they feel from the disruption is real and should be respected as such. You’ll have so many more amazing days if you can remember that.
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